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Friday, January 27, 2012

Community Service By Older Adults Living in Nursing Homes, Assisted Living


Lettie Miller Frye, an assisted living resident of Greenfield makes quilts to raise funds for the Edinburg Volunteer Fire Department. Photo by Rich Cooley/Northern Virginia Daily News



When I was writing my book Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes, I created a chapter about a nursing home called Baby Boomer Haven based on best practices of various nursing homes, but not nearly enough, around America. This imaginary nursing home includes older adults performing community service. In this book excerpt, Ruth, a wheelchair –riding resident, takes readers on a tour and explains some of the service activities they perform:

“At Baby Boomer Heaven, I mean Haven, we emphasize win-win community service. We’ve learned that when we join with the community and put all of our notes together, we create some fine songs. Of course, we appreciate service from others, but we want to serve people, too. We want to feel like we are doing our part to make the world a better place now and for future generations.

Our gift shop sells crafts we make to help fund service projects.  Among several services we provide, residents help Fetching Feasts provide meals delivered to seniors at their homes. We perform tasks here that make the process easier for them. We sew blankets for newborns. We often tutor and read to children at our childcare center."

Ruth goes on to explain other service activities in which residents demonstrate their reciprocal partnership with the local community. Do you have community service activities to share about residents in older adult communities?

If you would like to know more about positive and negative aspects of nursing home life and how families can transition loved ones to long-term care facilities, Jonathan Rosenfeld, writer of Nursing Homes Abuse Blog recommends ten helpful resources there that can assist you.

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers and in e-book form at Amazon and Barnes and Noble booksellers.

Sunday, January 15, 2012

Happy Birthday to Hospice and Nursing Homes Blog (Video: .29)



Five years ago in January 2007, I decided to commit to writing Hospice and Nursing Homes Blog. Anybody who’s ever written a blog for years knows “commit” is the only word to use here, especially if you're the only writer. Cyberspace is a humongous place, but I firmly believe one person can make a positive difference.

Why do I blog? I want to promote more interest in hospice and palliative care, share my personal journey and insights as a hospice volunteer, increase person-centered nursing homes, and improve eldercare and quality of life for older adults in general. There are various ways to achieve this, and blogging is one of mine. Using stories, poems, news, research, interviews, photos, and videos, I  present universal information that includes the often-missing voices of people of color and concerns of urban areas.

The years keep ending and beginning, and now it's 2012. I can hardly believe it's been five years. Blogging is a challenging, rewarding, and service-oriented activity for me. It's given me the opportunity to meet and exchange ideas with interesting and diverse people all over the world. 

Thank you to all my wonderful readers for your support during my five years of blogging Hospice and Nursing Homes Blog. Commemorating this milestone with song are older adults DameEdithDivine and HerHandyman whistling “Happy Birthday to You!”




Healthcare blogs like mine and healthcare websites can be persuasive. They are used by many to impact the thoughts and actions of others. Is one more persuasive than the other? Here’s what the research says: https://www.linkedin.com/pulse/health-blogs-vs-websites-frances-shani-parker?trk=mp-reader-card

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers and in e-book form at Amazon and Barnes and Noble booksellers.
Hospice and Nursing Homes Blog

Thursday, January 12, 2012

Homeless Older Adults: Geriatric Problems and Hospice Care (Research, Video 5:15)


Living in a large urban city, I see homeless people a lot. At one point, the public school where I was principal had more homeless students than any school in Michigan. Having interacted with homeless people at various age levels, I often wonder about their life stories. Of particular concern are older adults who have been homeless for many years. What brought them to this condition?  What’s really going on with them physically, mentally, and emotionally? What happens to those living in shelters and on the streets when they are actively dying?

The average age of America’s homeless population continues to increase along with the geriatric syndromes many of them have. Research is important to understand and improve the plight of homeless older adults. With this in mind, researchers at Beth Israel Deaconess Medical Center studied two hundred forty-seven homeless adults aged 50-69 who were recruited from eight homeless shelters in Boston, MA. Their goal was to determine the prevalence of common geriatric syndromes of older adult homeless. Among their key findings are these percentages involving research participants:

1. Difficulty in performing at least one activity of daily living was reported in 30%.

2. Cognitive impairment was present in 24.3%.

3. Impaired executive function was present in 28.3%.

4. Criteria for frailty were met by 16%.

5. Major depression was present in 39.8%.

6. Self-reported hearing and visual impairment was present among 29.7% and 30.0% of subjects.

7. Urinary incontinence was reported by 49.8%.

In summary, homeless older adults were more likely to have functional impairment, frailty, depression, visual impairment, and urinary incontinence compared to three population-based cohorts of older persons. Geriatric problems that are potentially treatable are common in older homeless adults and are experienced at higher rates than in the general older population

If homeless people are living ill on the streets, they are also dying on the streets. What can be done to help homeless older adults in need of hospice care? Alpha Project for the Homeless has launched one of the only Hospices for the Homeless programs in the country. Living with Dignity, a program inspired by Kyla Winters, is located in San Diego, California. This video describes how hospice care supports the homeless.




Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers and in e-book form at Amazon and Barnes and Noble booksellers.

Friday, January 6, 2012

When Older Adults, Seniors Want to Die (Hospice Nursing Home Story, Research)

Some people think being around dying patients must always be sad because everybody fears death, and no one really wants to die. As a hospice volunteer, I have had several patients who could prove them wrong. These nursing home residents actually stated they looked forward to death and gave reasons that had nothing to do with depression. This is what hospice patient Rose said to me about her upcoming death:

“How old did you tell me I was?” Rose asked.

“You’re ninety-nine, and you’ll be a hundred years old on your next birthday.”

“A hundred years old is too old. I don’t think I want to be that old.”

“There are three other ladies in this nursing home who are older than that. One is a hundred three. We talked to her last week during your wheelchair ride.”

“How much longer will it be before I make a hundred? I don’t know if I want to wait too much longer.”

“It’s only one more month. I remember you said you had spiritual talks with your minister. If you decide to wait, I’ll get you a big balloon that looks like a birthday cake.”

“I guess I could wait. Yes, I think I will wait. That way I can celebrate my hundredth birthday. When I do get to heaven, I can tell everybody I lived to be one hundred.”

And that’s exactly what she did.

(Excerpt from Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes)

But wanting to die is not always that simple. According to this VU University Medical Center research study in Amsterdam about older adults’ death thoughts and wishes, 81.3% never had them. Among those who did, 67% had depressive symptoms, and 20% suffered from a depressive disorder. Wanting to die was associated with depressive symptoms, a depressive disorder, lower perceived mastery, financial problems, loneliness, small network, involuntary urine loss, being divorced, and having a speech impediment.

What can we learn from this research? Certain situations increase the likelihood that an older person wants to die. Although the desire to die may not be related to depressive symptoms, depression should be cause for investigation about death wishes and should be treated.

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers and in e-book form at Amazon and Barnes and Noble booksellers.

Tuesday, January 3, 2012

Burnout Compassion Fatigue: Health Care, Law Enforcement, Other Service Professions (Video 4:20)


Compassion fatigue is a form of burnout experienced in many service professions such as health care and law enforcement. It results from empathizing too much with another person’s pain. Without realizing it, professional and personal relationships may become entwined. Compassion fatigue can cause painful physical, mental, emotional, and spiritual exhaustion. Resentment may build toward the person receiving care. Substance abuse might be used as an escape from the exhaustion of caring too much.

Healthcare workers and others in service professions should monitor their behavior and feelings for signs of compassion fatigue. Treatment often includes counseling and the development of coping strategies.

This video titled Compassion Fatigue: The Stress of Caring Too Much describes compassion fatigue as explained by workers in the mental health, hospice, and law enforcement professions.





Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers and in e-book form at Amazon and Barnes and Noble booksellers.

Tuesday, December 27, 2011

Ten Steps to Becoming Dead Right: Hospice Volunteer Perspective



If there’s one thing I’ve learned from years of hospice volunteering, it’s that death will come when it comes. Dealing with death can be so much easier when it’s approached like any other important life event. By following a workable plan, you can enjoy comforting closure when that ultimate destination is reached. Consider using these ten steps featuring scenic routes on your journey to becoming dead right:

     Ten Steps to Becoming Dead Right

1.  Accept death as part of life.

Death will come no matter how often the topic is avoided or how forcefully technology wrestles it to the ground. 

2.  Listen to the Universe.

Some say it’s the Universe. Many use God, Higher Power or other names. If you believe you are part of an infinite enlightenment, be still and listen.

3.  Expect rainbow smiles.

Rainbow smiles are joyous, healing, memorable moments that come more often when anticipated.

4.  Live a healthy lifestyle.

Practice habits of healthy living in all areas of your life.

5.  Be informed and proactive.

Keep abreast of what’s happening in life. When circumstances arise that can benefit from your input, apply what you know.

6.  Do your best.

You can’t solve every problem or be everything to everybody. Do what you can.

7.  Give service to others.

Complement others by fulfilling needs through service. Both server and recipient benefit from this partnership.

8.  Be grateful for blessings.

Blessings come like wondrous celebrations held in your honor. Let appreciation reign!

9.  Put death wishes in writing.

Fulfillment of your end-of-life wishes will often depend on what you discuss and record now. Get medical, financial, and property decisions in order.

10.  Have a dignified death journey.

Breathe in your final phase of life with contentment. Experience a dying process that brings beauty and calm to your personal letting go.

© Frances Shani Parker
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes 


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers.

Monday, December 19, 2011

Older Adult Religion and Spirituality (Research, Hospice Nurse Video 2:51)


Are most religious older adults spiritual? Are the most spiritual ones religious? Topics related to spirituality and religion can get very personal. That’s why many people avoid them. As hospice volunteers, we are advised not to impose our personal religious or spiritual beliefs on patients. Some people have daily spiritual experiences that are a core part of their lives. At the same time, they may have varying levels of praying or attending formal religious services.

When older adults come together and live in a community, they bring all their varied personal religious and spiritual beliefs and practices, including no beliefs and practices. Rush University Medical Center researchers studied the levels of daily spiritual experiences of 6,534 older adults living in biracial communities. These are the reported results of that study:

1)   Most participants had daily spiritual experiences. African Americans and women had more than Whites and men.

2)   Prayer and worship were moderately connected with daily spiritual experiences.

3)   African American race, older age, female gender, better self-rated health, and greater social networks were associated with higher daily spiritual experiences scores. Higher levels of education and depressive symptoms were associated with lower daily spiritual experiences scores.

Overall, these findings are consistent with other research findings on religion and spirituality in the lives of older adults.

As eleven-year-old Jayna Brown demonstrates in this video, many of these spiritual connections begin in childhood. She sings "Take Me to the King" by Tamela Mann:





Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers and in e-book form at Amazon and Barnes and Noble booksellers.

Wednesday, December 14, 2011

Male Caregiver of Mother: Interview with Frank Gasiorek and Frances Shani Parker



Catherine and Frank Gasiorek

Frank Gasiorek is a man devoted to his terminally ill mother. He belongs to a growing group of 14.5 million men who make up one out of three caregivers in America. Like millions of people carrying personal stories most of us will never know, he told me he was a caregiver only after I happened to mention my involvement with eldercare. From our conversations, I have come to view him as an excellent role model for caregivers in general, especially men. In this interview with me, he shares his caregiving journey:

1)   Frank, how did you become your mother’s primary caregiver?

I began my role as my mother's primary caregiver due to being an only son with siblings living out of state. Also, having a strong bond with a person who was a dedicated single parent and mentor during my early childhood years gave me the desire to give back and return the service.

2)   What concerns do you think are unique to caregiving of a parent by an adult child, especially one of the opposite sex?

Sometimes different interests and backgrounds may be a factor.  However, the realization that I only get one of these, a unique person and mother, is important. As the years passed and more personal care and attention were needed, my mother stated she did not want to live her final years outside of her home. She also did not want outsider care assistance.   

Acceptance of my role as a male caregiver had to be addressed. No longer am I the son. I had to explain to my mother that, when I step in as the caregiver, she needs to respect the care she receives. I am the professional person providing home care. There have been times when she returned from the hospital and then to rehab and back home. I did contract some part-time assistance with homecare nursing for the short term. 

3)   Has your being a male made you less prepared or efficient as a caregiver?

Having worked previously within the healthcare system has exposed me to the assistance that comes with caregiving. In addition, having been rooted in human sensitivity has provided me with a foundation to complement the needs of the healthcare person.

4)   What are some resources that you have found to be especially helpful and that you would recommend for others?

Always consider the local church, community and city services that offer guidance and support. Public and private agencies are easy to research via the Internet.

5)   Do you communicate regularly with other caregivers for support?

Having a network of colleagues associated with caregiving is essential to maintaining balance. A support group with other caregivers creates a bond of positive feedback. Primary physician support staff members are often good individuals for consultations. 

6)   Caregiving can be stressful and socially isolating. Have you experienced this? If so, how do you cope with these challenges?

My network of support helps to keep me balanced when I experience challenges. We allow one another to vent our daily drama of caring for loved ones.

7)   What rewards have you enjoyed as a caregiver?

Spiritually satisfying, caregiving brings the joy of assisting another person for the common good.  Keeping a person exposed to dignity and love is uplifting to the spirit.

8)   What advice would you give to other caregivers now that you understand what this responsibility entails?

Beware. Caregiving is not for everyone. Caregiving is not easy.  Caregiving takes planning and involves orchestrating many daily human needs of an individual. Always maintain space between caregiving assignments and appointments to recharge.

9)   How can those who are not caregivers support those who are?

Financial support would seem to be the easy answer. Nonetheless, periodic backup team members who are not caregivers can greatly assist primary caregivers. For example, team members can provide helpful phone calls to caregivers and homebound individuals.
 
   10)  Do you have any final words?

Caregiving is a rewarding experience that is not for everyone. As our mature population continues to live longer and more independently, there is an increasing need for caregiving at different levels. Respect for life must be admired, honored and planned for to create quality life.

Frank, thank you for sharing your caregiving journey. Your firsthand knowledge will be beneficial to caregivers, patients and many others involved in improving quality of life for those in need of caregiving assistance.

Postscript:


Synopsis of Catherine Louise Palmer-Gasiorek  

April 22, 1930 - June 16, 2012

Born to Lenard and Emily (Eby) Palmer on April 22, 1930 in Monroe, Michigan on 10th Street, Catherine was the fifth of nine children, five sisters and three brothers. She was baptized in Monroe at Saint Michael's Church on Front Street where she attended grade school through second grade.  However, the economic downturn of the 1930's developed change for the family, and they eventually moved to a farm in Carleton on O’Hara Road near Saint Patrick's Church. There she continued school and the sacraments of communion and confirmation. When she was thirteen years old, she met Detroiter Rose Radajewski who was part of a family produce business expanding market share to supply Eastern Market with products.   

It was at that time she met Frank A. Gasiorek, then eighteen and another Detroiter, who was employed to assist with the produce service. Both Catherine and Frank developed a close friendship over several years. However, the war years took him away to the Pacific Campaign at Saipan, Nagasaki and other area islands. He returned at the age of twenty-two when Catherine was seventeen, and they were engaged in Detroit at Rouge Park just off Warren Avenue and Outer Drive where Frank once caddied for golfers. Shortly after, they were married on November 8, 1947 with Frank embracing her community and home and Catherine complementing him by embracing his culture and home. By 1949 the family was started to eventually consist of five children, four daughters and a son. The happy family unfortunately experienced change as sadly Frank expired in his home May 25, 1969 during his early 40's.  

Catherine maintained the family and home by keeping focus on basic needs and spiritual concerns for everyone. The years passed, and the children grew up and married to accomplish hopes and dreams, bringing both grandchildren and great-grandchildren to fill her years with joy. During the last twenty years, Catherine experienced poor health. The last five years offered more challenges with countless miracles to recover and return to a quality life. She wanted to be respected and honored with her final days in her home and in the company of family and friends. Quietly, she passed away in exactly the fashion she hoped for on Saturday, June 16, 2012, the feast day of the Immaculate Heart of the Blessed Virgin Mary and the day after the Most Sacred Heart of Jesus. Catherine was surrounded by family, martyrs, saints, angels and heavenly hosts ushering her towards the highest alter in heaven to celebrate the Eucharistic feast for the Lamb of God and the Resurrection of her soul with Christ, her Lord and Savior.

Joys: Family, friends, music, cultural events; Faith in Mary, the Holy Family, the Eucharist, IHM Sisters

Quotes: “We all have a number of days given to us at birth. You are numbered.”  
“Your health is your wealth” and “Some other guy has it worse off than you have it.” 

Flower Choice: White mums and roses

Favorite Color: Baby blue

Cherished Object: Communion Plaque of Mary

Favorite Prayer: "Hail Mary" and “Jesus my Lily, Jesus my Flower, the Lord be with me, my dying hour.”

Last Words: “I am ready.” 




Frances Shani Parker, Author

Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers in America and other countries and in e-book form at Amazon and Barnes and Noble booksellers.