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Sunday, June 2, 2013

Older Hospice Prisoners: Compassionate Release or Life in Prison? (Video 4:51)


As many as 3,300 inmates in the U.S. die in prison every year. Quality end-of-life care in prison continues to grow as more prisons establish hospice programs, particularly for an aging prison population. Inmate hospice volunteers play an important role. If a terminally ill patient is in prison, attentive caregiving can be especially beneficial when given by familiar faces of those who have also experienced the prison system.

Compassionate release is a legal system that gives inmates early release from prison sentences based on medical or humanitarian changes in the prisoner's situation. Compassionate release procedures can be mandated by the courts or by internal corrections authorities.

Controversial discussions continue to surround the topic of early release options for older adult inmates who are infirm and ill. Referred to as “compassionate release” and “medical parole,” supporters feel that placing these inmates in private medical facilities would be more cost effective for the prison system, especially for prisoners serving life terms and no longer considered a danger to society. Others who support victims of heinous crimes are adamant that prisoners should serve their life terms in prison regardless of their age and severity of their illness. What do you think?

This video explains the compassionate release program and features experiences of dying prisoners and hospice inmates who care for them.




Frances Shani Parker, Author

Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at many booksellers such as Amazon and Barnes and Noble .

Sunday, May 26, 2013

End-of-Life Humor: Hospice Caregiver, Dementia Patient Balloon Story


It’s a boy! No, Miss Ruby didn’t give birth at age 89. But, like all her room visitors, she thought her balloon message was hilarious!


What does this have to do with quality end-of-life care? Contrary to what some people think, many terminally ill patients continue to maintain a comic state of mind and often initiate and enjoy participating in humorous activities. Sometimes the humor is unintentional, but the energy is just as exciting. That has definitely been my experience as a hospice volunteer.

I’m a balloon lover. My favorites are Mylar foil balloons with special shapes, themes, and messages. Many of my patients with dementia enjoy balloons as much as I do. Funny scenarios have often resulted after I brought them balloons. This true story came about after I offered to get a seasonal spring balloon in a flowered shape for Miss Robinson, a patient with Alzheimer's disease, the most common form of dementia. But she decided she preferred a green balloon instead. This heart-warming balloon adventure followed.

Excerpt from my book Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes:


Miss Robinson was very emphatic about choosing a green balloon. She couldn’t explain why the color green meant so much to her, except to say it was her favorite color. The party-supply store had many flowered balloons, but green ones were scarce. After a lengthy search with my help, the salesperson found one green balloon in the entire store. Later that week, I brought the balloon to Miss Robinson, tied it to her wheelchair, and took her for an indoor ride around the nursing home to show it off.

“Look, everybody! Look at my red balloon! Did you ever see a red balloon this pretty? It’s my red spring balloon! Hey, everybody, look at me! I’ve got my own red balloon!” she exclaimed.

A few days later, I visited Miss Robinson. Her balloon hovered over her bed like a shiny green pit bull on guard. She could enjoy watching it bobbing around doing its doggie dance and even talk to it if she felt lonely.

“Hi, Miss Robinson. Do you remember who I am?” I asked, giving her a little memory test.

“Sure, I remember you. You’re the hat lady who brought me my purple flag. See, it’s still waving in the air. I just love my purple flag!”

I smiled, thinking of the evolving green balloon that had developed a life of its own. In less than two weeks, it had evolved at three different levels with hidden powers I hadn’t known. It was enough to have gone from a green to red balloon. Now, it had become a purple flag. I couldn’t wait to visit Miss Robinson again before the balloon deflated completely. I looked forward to hearing more about her happy adventure with the green balloon and its miraculous makeovers. 

© Frances Shani Parker

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at booksellers such as Amazon and Barnes and Noble .


Friday, May 17, 2013

Dreams About the Deceased: Dream Themes and Bereavement (Hospice Caregiver Research)


Have you had dreams about someone close to you who has died? Did the  dreams affect your mourning process? Researchers of dreams and mourning asked these same questions and more to 278 bereaved persons who had been hospice caregivers. The study focused on the relationship between dreams and the mourning process. Fifty eight percent of those who responded said they dreamt about deceased loved ones. Most dreams were pleasant, both pleasant and disturbing, and a few completely disturbing. Which kinds of dream have you had?

Prevalent dream themes included these:

1)   Pleasant past memories or experiences
2)   The deceased free of illness
3)   Memories of the deceased's illness or time of death
4)   The deceased in the afterlife appearing comfortable and at peace
5)   The deceased communicating a message

How did your dreams about the deceased affect your mourning process? Sixty percent of research participants felt their dreams increased their acceptance of the loved one’s death and improved their comfort, spirituality, sadness, and general quality of life.

This research is important because it shows the high prevalence and therapeutic relevance of meaningful dreams among the bereaved. While many counselors may be uncomfortable addressing dreams during psychotherapy with patients, they should consider the relevance of dreams among those who are bereaved. Counselors should consider increasing their own awareness, knowledge, and skills on this topic.

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at booksellers such as Amazon and Barnes and Noble .