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Saturday, October 2, 2021

School-Nursing Home Partnerships (Service-Learning, Dementia)


I have had many occasions as an educator to implement and consult on intergenerational partnerships between schools and nursing homes. This was done through service-learning, a teaching and learning approach that connects learning with meeting community needs. Included in curriculum learning objectives, service-learning is used by many schools and community organizations. For example, after students learn how to write letters at school, service-learning could include writing letters to nursing home residents who would benefit from receiving them. Students can also do school performances at nursing homes.

A growing body of service-learning research shows that students benefit academically and affectively from service-learning. Because teachers prepare students well before their nursing home visits, students know what to expect. If a resident falls asleep or cries, students understand why that is okay. Dementia is understood with relevance and meaning. Students are open to the experience of being with the elderly and the challenged. They take pride in the roles they play as visiting caregivers who enrich lives. They empathize with the realities of residents living with dementia.

After students return to school, they reflect on how their nursing home visit affected residents and  themselves, what they learned, and ways to share that information with others. While students' reflections can take many forms (written, oral, dance, music, art), the poem below is an example of a student’s poetic reflection. My book, Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes, includes a chapter on intergenerational partnerships between schools and nursing homes. 

A Student's Service-Learning Reflections

I know you erase your
roommate sometimes, 
take distant trips in your mind, 
see me as a short brown blur
when I visit your nursing home.

I know your childhood
friends whisper secrets,
your favorite dress has ruffles,
my cards touch you with sunshine,
you love the stories I tell.

I know that carrots
make you frown,
my visits swing you higher,
loneliness glues you down,
you miss your friends who died.

I know your words 
make me feel better,
feed my heart with praise,
help me care about others
the way you care about me.

© Frances Shani Parker


Note: Winner of the National Service-Learning Partnership Trailblazer Award, Frances Shani Parker, a hospice volunteer, writer,  eldercare consultant, and retired Detroit Public Schools principal, has been instrumental in implementing service-learning in school districts across America.

You can read about fourth graders' nursing home research on ageism stereotypes here.

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. Visit 
Hospice and Nursing Homes Blog and Frances Shani Parker's Website.

Wednesday, September 1, 2021

Are You Asking People to Tell You Your Name?

                                                                                                                             

Seriously, if you do this, please stop asking people living with dementia to tell you your name when you greet them. Don't start the conversation with a test they might fail along with your hurt feelings when they do fail. Just say your name and who you are. If they decide to give you another name, that may be okay, too. Don't say that person has been dead ten years, and you told them that 925 times. Don't say that dead people are never coming to visit them again, so quit asking about them or you will take them to the cemetery to see their graves as proof.

Can we all just get along and lighten up? As a hospice volunteer over 20 years mostly in Detroit nursing homes, I have learned there is no one way of handling dementia issues. A lot depends on the level of the disease a person has and their reality. Personally, I have enjoyed impersonating other people sometimes. For example, I have pretended to be a male hospice patient's deceased wife. When I entered his room the first time, he grinned widely, called me Judy, and said how glad he was to see me. Instinctively, I decided to try being Judy, even though I knew from the brief information I had been given about him that Judy, his deceased wife, had been dead several years.

From that day until he died, I entered his reality world as Judy whenever he decided that was who I was. Although neither one of us sang too well, we loved crooning old Motown songs when we reminisced about our dates at Belle Isle Park when we were married. Passing ships, seasonal surroundings, and our general joy were back-in-the-day scenarios we revisited. I often let him take the lead with his descriptive memories that were enlightening, amusing, and welcoming to me. I felt like I was right where I belonged being Judy. I knew we were making progress on some level.

When each visit ended, we BOTH had created more wonderful memories of our special time together at the nursing home. We could recall later with pleasure our experiences featuring a union of minds that made perfect sense to us. And I knew that I could always go back to being Frances Shani Parker in my own reality world any time.


Frances Shani Parker, an eldercare consultant and retired school principal, is author of Becoming Dead Right: A Hospice Volunteer in Urban Nursing HomesThis book is available in paperback and e-book editions in America and other countries at online and offline booksellers. Visit Frances Shani Parker's website.                                                                   

Monday, August 2, 2021

Life After Death Dementia Story


This true story is from my book Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes.

When Mamie Wilson (pseudonym) became my hospice patient, she had several unusual qualities that made me wonder. At sixty-five, she was the youngest person assigned to me after years of volunteering at various Detroit nursing homes. She had the same name as my grandmother, and I had her grandmother's name. When we made these discoveries during our first meeting, we took them as signs that we were destined to have a great patient - volunteer relationship. In time, however, I learned that the most unusual thing about Mamie was what she said.

“Is your mother alive?” Mamie asked me one day.

“No, she died a few years ago in her eighties,” I responded.

“You know, you can still be with her and talk to her if you want to.”

“Oh, I know we can still communicate.”

“No, I mean for real. You can be with her in person. Just get her clothes together and her shoes. Don’t forget her coat. They say it’s cold outside. Take them to the cemetery where she’s buried. Just set them on top of her grave and wait. She’ll rise out of her grave and put them on. Then you can take her home with you. In every way, she’ll be the same person you knew. Other people won’t be able to see her, but you will.”

“Hmm. I’ve never heard that before.”

Mamie responded, “Most people haven’t. I know about it because I did it with my two grown sons. They were both murdered on the same day in a drive-by shooting. I didn’t know how I would get through the pain. Finally, I took their clothes to the cemetery and did what I just told you. Both of them came home with me. It was the best day of my life. I got my sons back.” Satisfied, she smiled.

Some people will dismiss this story as crazed comments of a demented woman. But if you really listen, you’ll hear the magnificent empowerment in her words.

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes
This book is available in paperback and e-book editions in America and other countries at online and offline booksellers. 
Visit Frances Shani Parker's Website

Monday, July 12, 2021

Asexuality Among the Old and Young (Video 4:55)


                                                                      
Asexuality is a medically approved sexual orientation including about 1% of people who represent millions worldwide. Because you may have contact with them in any area of your life including your workplace, it's important to understand their concerns in adjusting to a predominantly heterosexual, sex-oriented society. While the behaviors of asexual people vary, they have the same emotional needs as everyone else. They may feel embarrassed, isolated or confused because they are different from the standard society conveys as normal sexuality. They are a diverse community with people experiencing relationships in various ways. This includes loving relationships in which they have no sexual attraction and are not trying to be abstinent or celibate. Emotional and romantic attractions are not the same as sexual attractions.

People often wrongly stereotype many older adults as being asexual simply because they are old. The reality is that older adult asexuals have never had any interest in sex or sexual attraction towards others. Because the media focus on asexuality emphasizes younger adults, older asexuals have more difficulty finding resources and supportive groups to share their concerns in an environment of acceptance. Fortunately, the Asexual Visibility and Education Network (AVEN) hosts the world's largest online asexual community and a large archive of resources that can benefit anyone interested in this topic. 

What were the probable concerns of older adults when they were young? In the following video titled "5 Asexual People Explain What "Asexual" Means to Them," young asexual people share their experiences and provide better understanding of asexual life in general.

                     


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and ebook editions in America and other countries at online and  offline booksellers. Visit my website at http://www.francesshaniparker.com/.    

Monday, July 5, 2021

Black Children and Healthcare Disparities (Video 2:48)


Healthcare disparities are inequalities that exist when members of certain populations do not benefit from the same healthcare as other groups. H
ealthcare disparities victimize adults and children. Unfortunately, for many Black people, disparities are cradle-to-grave tragedies beginning at birth. Disparities include not only the high percentages in disease rankings such as heart disease, cancer, stroke, and diabetes, but also procedures such as pain treatment.  A disturbing study of America’s emergency rooms reveals that Black children receive substantially less pain control for appendicitis.

In America, Black healthcare disparities are a sickness in the healthcare system, a systemic overt-covert racism or stereotypical racial perceptions of pain that is not being addressed effectively. This is not only a healthcare issue, but a moral one. While some may see this only as a Black issue, it isn’t. Healthcare disparities impact not only individuals victimized by them, but also their families, their communities, and the nation. With generational suffering and repercussions on many levels, illnesses create long-term economic burdens and major losses of productivity.

The following video addresses a study of America’s emergency room disparities revealing that Black children receive substantially less pain control for appendicitis than non-Black children.




Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. 
Visit my website at www.francesshaniparker.com.

Sunday, June 13, 2021

Male Caregiver Interview: Frances Shani Parker and Frank Gasiorek

                           

                            Catherine and Frank Gasiorek

I met Frank Gasiorek during a time when he was devoted to taking care of his ill mother who died. Like millions of people carrying personal stories others will never know, he told me he was a caregiver after I happened to mention my involvement with eldercare. According to AARP, the typical caregiver is a middle-aged woman caring for a relative, often her mother. Nowadays, 40 percent of the 40 million Americans caring for loved ones are men. They may accept a caregiving role while having little experience and may be less inclined to reveal their problems to others. 

From my conversations with Frank, I began to view him as an excellent role model for caregivers in general, especially men. In this interview with me, he shared his caregiving journey:

1)   Frank, how did you become your mother’s primary caregiver?

I began my role as my mother's primary caregiver due to being an only son with siblings living out of state. Also, having a strong bond with a person who was a dedicated single parent and mentor during my early childhood years gave me the desire to give back and return the service.

2) What concerns do you think are unique to caregiving of a parent by an adult child, especially one of the opposite sex?

Sometimes different interests and backgrounds may be factors.  However, the realization that I only get one of these, a unique person and mother, is important. As the years passed and more personal care and attention were needed, my mother stated she did not want to live her final years outside of her home. She also did not want outsider care assistance.   

Acceptance of my role as a male caregiver had to be addressed. No longer am I the son. I had to explain to my mother that, when I step in as the caregiver, she needs to respect the care she receives. I am the professional person providing home care. There have been times when she returned from the hospital and then to rehab and back home. I did contract some part-time assistance with homecare nursing for the short term. 

3) Has your being a male made you less prepared or efficient as a caregiver?

Having worked previously within the healthcare system has exposed me to the assistance that comes with caregiving. In addition, having been rooted in human sensitivity has provided me with a foundation to complement the needs of the healthcare person.

4) What are some resources that you have found to be especially helpful and that you would recommend for others?

Always consider the local church, community and city services that offer guidance and support. Public and private agencies are easy to research via the Internet.

5) Do you communicate regularly with other caregivers for support?

Having a network of colleagues associated with caregiving is essential to maintaining balance. A support group with other caregivers creates a bond of positive feedback. Primary physician support staff members are often good individuals for consultations. 

6) Caregiving can be stressful and socially isolating. Have you experienced this? If so, how do you cope with these challenges?

My network of support helps to keep me balanced when I experience challenges. We allow one another to vent our daily drama of caring for loved ones.

7) What rewards have you enjoyed as a caregiver?

Spiritually satisfying, caregiving brings the joy of assisting another person for the common good.  Keeping a person exposed to dignity and love is uplifting to the spirit.

8) What advice would you give to other caregivers now that you understand what this responsibility entails?

Caregiving is not for everyone. Caregiving is not easy.  Caregiving takes planning and involves orchestrating many daily human needs of an individual. Always maintain space between caregiving assignments and appointments to recharge.

9) How can those who are not caregivers support those who are?

Financial support would seem to be the easy answer. Nonetheless, periodic backup team members who are not caregivers can greatly assist primary caregivers. For example, team members can provide helpful phone calls to caregivers and homebound individuals.
 
   10) Do you have any final words?

Caregiving is a rewarding experience. As our mature population continues to live longer and more independently, there is an increasing need for caregiving at different levels. Respect for life must be admired, honored and planned for to create quality life.

Frank, thank you for sharing your caregiver experience. Your firsthand knowledge will be beneficial to caregivers, patients and many others involved in improving quality of life for those in need of caregiving assistance.


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers in America and other countries and in paperback and e-book forms at Amazon booksellers. Visit my website at www.francesshaniparker.com.

Monday, May 3, 2021

Cremation Pros and Cons



Cremation is definitely in the mainstream these days as a method of body disposal. People are finding interesting ways to dispose ashes or cremains of loved ones. Traditionally, cremains are often stored by families who keep them in urns and other containers that vary in their uniqueness. These may include vases with pedestals or even personalized teddy bears with hidden pouches. Teddy bears can be sewn from the deceased person’s clothes. Among other uses, cremains are being used in jewelry, shotgun shells, and fireworks. In terms of destinations, cremains can be stored in cemetery plots, mausoleum, or scattered in a garden or body of water. They can even be sent aloft into outer space into luna orbit.

But love for cremations is not embraced by everyone. Even though they are cheaper than traditional burials and better in terms of ecology, some view cremations as morally inadequate. They believe cremations include "the destruction of community memory, and, by extension, community and individual identity. Cremations deprive the living of these benefits, while also treating the dead in a way which goes against common intuitions about personhood, anthropology and respect for the will of the deceased.” They believe death and the corpse are too important to be marginalized by cremation, depriving individuals and communities in terms of social ethics.

Like many other death-related practices, people should make plans in advance regarding disposal of their bodies in a manner they approve and want. If cremation is selected, they should also plan for disposal of the cremains. This includes making sure they are following the law regarding where they do the disposal. Disposal at Disney World and Disneyland, a popular trend for some, has become a nuisance for others.


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers.

Monday, April 5, 2021

Can Volunteer Service Choose You?

                    

If you are a volunteer, have you ever thought that you didn't choose volunteer service, but that it chose you? I have been a hospice volunteer for twenty years, most of them in urban nursing homes. But I can remember when I dreaded being around sick people. Mostly, I felt I didn't have skills to do the right things in a healthcare environment where somebody might get hurt if I messed up. Once in high school as part of a school club, I visited a nursing home where I fed a woman jello. Years later, jello still reminded me of her and the nursing home, but not in a good way. Volunteering with sick people? Nope, no way! Not me!

So what changed me? Life did. During the 90's, AIDS caused by the HIV virus was like a pandemic in the LGBTQ community. Infected people were often ostracized, criticized, demonized, and dying. I was principal of an urban public school in an area of high poverty, crime and homelessness. Although I had plenty to do on my crowded plate, I felt right at home. However, over a three-year period, I was thrust into life-threatening dilemmas of two gay men I hardly knew. They were my introductions to long-term care of the terminally ill.

Jake, who was in his 30's, came around to talk sometimes after school dismissal. He was showing signs of dementia. He complained about being harassed by invisible people all the time. His boyfriend left him, and he had no family support. I knew he couldn't navigate the healthcare system alone. Eventually, I convinced him and his unseen tormenters to pile into my compact car, buckle up, and let me drive everybody to the hospital where Jake was admitted immediately. Later, he was placed in a nursing home that he said the invisible people did not like. They left, but I looked out for him until he died several months after that.

I thought that surreal scenario would never happen again, but it did a few months later with a man named Sam who was in my exercise class. I didn't really know him, but I asked him what was wrong when I saw him crying in the parking lot one day after class. He told me he had AIDS and had just lost his job because he had missed too much work. He had little family support because they knew he had AIDS and were reluctant to be around him or go to his house. I found him an HIV-AIDS support group which he loved, helped him on his medical journey, and learned more about healthcare and myself in the process. I believe good service is always win-win when I am open to my own growth. Fortunately, his condition improved greatly when better medications became available. 

Several months later after Sam had moved on, I met a friend I had not seen in quite a while who told me she was a hospice volunteer. I actually asked her what a hospice volunteer does and was surprised when I realized that was what I had been doing with the two men. I had been a hospice volunteer all that time and didn't even know it. A few weeks later, I saw a newspaper ad recruiting people for hospice volunteer training. I decided to take the classes and become certified  in case another very ill person showed up in my life. 

Of course, the rest is history. Terminally ill people have come into my life often as patients assigned to me in various nursing homes where I have experienced compelling challenges and satisfying rewards. My book, Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes shares captivating stories, original poems, and more about the nursing home world and hospice volunteering that chose me.

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. Frances Shani Parker's Website

Monday, March 1, 2021

Hoarders: Who? Why? How? (Blog Video 3:39)

Hoarding can be described as a disorder characterized by excessive acquisitions and persistent difficulty in discarding possessions. These possessions can be alive or not. This disorder continues to be a serious problem for many people that you may or may not know are hoarders.

While you may think a hoarder would be somewhat embarrassed by terrible living conditions, that is not always the case. I discovered this when a friend I didn’t know was a hoarder actually invited me inside her one bedroom apartment in the building where we both lived. She displayed no shame at all about her accumulated chaos. 

The entry hall was so packed with stacks of “stuff” that only a narrow passageway remained. This path bordered by mounds of boxes, old clothes (some that she said her mother had saved from her childhood), unopened TV purchases and other clutter was overwhelming.  When two cats came running to greet us, I was in shock. Unsanitary and dangerous living conditions such as these, particularly for older adults, puts them at increased risk for fire, falling, disability, and other health risks.

A systematic study by two reviewers of the literature to determine the possible causes of hoarding suggests that individuals with hoarding behaviors may have a genetic susceptibility or abnormal neural activity in the brain. Traumatic life experiences may also predispose individuals to hoard.

In the following video, the unsanitary conditions at a California home caused the owner to become sick and hospitalized. “Inside Edition,” a television show, features Jim Moret suited up to go inside with the crew assigned to clean the space. A New York woman's hoarding problem extended beyond the walls of her house and into her front yard concerning her neighbors. Animal hoarding is also included in this video.



Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. Frances Shani Parker's Website

Saturday, February 13, 2021

Older Adults and Robotic Dogs: Meet Aibo



Imagine wanting a pet dog, but knowing you don’t have the time, living space, or the energy required to walk and play with it as regularly as its needs require. Many older adults who fit that description might benefit from a robotic dog that responds to them in ways that alleviate their loneliness and soothes their cravings for love and attention. Years ago, I learned that such a dog existed in the form of Sony’s robotic dog named Aibo, which was being tested in nursing homes.

I was so impressed with the pleasing possibilities this little charmer could bring to older adults, especially lonely ones, that I included a robotic dog story in my book Becoming Dead Right: A Hospice Volunteer in Urban Nursing HomesIn the chapter titled Baby Boomer Haven, a resident takes the reader on an imaginary tour of a nursing home based on best practices including a a robotic dog: 
“Watch out for Diva Dog over there, one of several resident pets. She’s just looking you over to make sure you look her over. In her spare time, she’s a certified psychologist. For residents who prefer the convenience of a responsive robotic pet, we have two mechanical dogs that operate with artificial intelligence. They provide playful companionship without the need for feeding, walking, and cleaning up after them. The best part about the robotic dogs is that the more residents interact with them, the more responsive the dogs become to the residents. All the animals here are like our extended family.”
Robotic dogs are also used in therapy for residents living with dementia.


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. Frances Shani Parker's Website