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Sunday, October 20, 2013

Dementia, Alzheimer’s Experience: Poem, Virtual Dementia Tour Video 2:20


Do you ever wonder what it feels like to have dementia? I do. As a hospice volunteer in Detroit nursing homes, I have spent considerable time with residents who have dementia. This poem describes how I think many of them feel.

Pieces of Our Minds

On the border, on the brink,
we shiver like quivering tears
swollen to fullness with distress,
reluctant to spill an excess. 

Strapped in delusions
wondrous and weird, we ride
roller coasters of reality
through joy and fear.

On the brim, on the rim,
like balls circling in frustration,
we scramble for thoughts
lost in nets of uncertainty.

Invaded by memories,
peeping, creeping, weeping,
we laugh and cry to the
rhythm of nostalgia.

On the fringe, on the edge,   
changing, adjusting, impacting,
we crave compassion in our
 search for society’s sanctuary. 

© Frances Shani Parker

For a more personal experience of what it’s like to have dementia, a sensitivity training simulation can be very beneficial. The Virtual Dementia Tour®  is an interactive learning experience designed to help those caring for people with Alzheimer's disease or other forms of dementia. The tour includes five tasks to complete in the manner that a person with dementia would experience them.




Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers.

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