Predicting Death of the Terminally Ill: End-of-Life Care (Research and Video 2:55 mins.)

Consider that almost half of the people over 85 years old die annually in nursing homes across America. Even when they don’t share what they think, family members, friends, and the nursing home staff often develop their own individual perspectives about when terminally ill patients will actually die. Unfortunately, because it is not always easy to predict how close to death someone is, inaccurate guesses are made that may deny end-of–life care to those who might benefit from it. Although the predicted time of death for hospice patients is within six months, I have had hospice patients ranging from dying immediately after being assigned to hospice to those staying in hospice for years.

What do people consider when they set out to predict death? A research study that included 45 residents was set up to create a framework for organizing social interactions related to end-of-life care and to characterize the social construction of dying in two nursing homes. The resulting framework included five categories related to the possibility of death:

1) Dying allowed

2) Dying contested

3) Mixed message dying

4) Not dying

5) Not enough information

Based on predictions, over half the resident cases were classified as mixed message dying or not enough information. This indicates the ambiguity regarding residents’ care plan goals found in the two nursing homes in the study. These results imply the importance of residents, family, staff, and physicians working together to determine the dying status of residents as it relates to social interactions and healthcare the resident receives. Shared conversations about goals of care, and how these goals will be reached are important in determining the quality of care residents receive. You can read more about this research study from the "Gerontologist."

While on the subject of predicting death, many of you probably remember reading in the news two years ago about a cat named Oscar that predicted deaths of nursing home residents. Oscar has even received a hospice award. In this video titled “Cat Is Harbinger Of Death (CBS News),” Oscar’s death predictions are discussed.

Many healthcare staff members who work with dying patients will tell you they have had patients share stories about seeing dead people, ghosts, spirits they recognize, and angels. View this post for my personal story and an informative video: https://www.linkedin.com/pulse/end-of-life-seeing-dead-people-angels-frances-shani-parker?trk=mp-author-card

Frances Shani Parker, Author

Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers.

Hospice and Nursing Homes Blog

Hospice Care in Assisted Living Facilities (Research, Video 2:51 mins.)

Many people have told me that they didn’t know hospice care exists in nursing homes. Even more would probably be surprised to know that it also exists in assisted living facilities (ALFs). I can’t emphasize enough that hospice care is available no matter where a person lives.

Reported in the “Gerontologist,” a study of hospice care in assisted living facilities was done to get detailed descriptions of end-of-life care provided by ALF medication aides, caregivers, nurses, and hospice nurses in urban and rural settings. Interviews were used to gather information. Having worked as a hospice volunteer in urban nursing homes for several years, I was interested in the results. They were very similar to what I would have expected from an urban nursing home or any other institutional care:

1)  The quality and nature of resident-staff and assisted living-hospice staff relationships are critical in promoting good end-of-life care for ALF residents.

2)   Length of the resident's stay in the facility and how well staff knew the resident were associated with the quality of the resident-staff relationship.

3)  Respectful collaboration, clear communication, use of complementary knowledge and skills of staff, and shared expectations about the care were associated with positive staff relationships.

4)  ALF administrative support for hospice patients was important.

Basically, ALFs and hospice organizations that are committed to working together with hospice programs must both support staff, patients, and families. If this sounds like an obvious conclusion, it is. Unfortunately, it is a reality that is still unrealized too often. There is a need for more successful models of this partnering system of care at both nursing homes and ALFs. From my own observations in nursing homes, especially regarding staff turnover, I know that the non-curative philosophy of hospice care requires ongoing staff inservice and monitoring to be implemented successfully.

This video relates the positive and negative transition concerns of an  elderly man (age 95) moving to an assisted living facility.

Frances Shani Parker, Author

"Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes”

“Hospice and Nursing Homes Blog”