Caregiver–Patient Poem: Hospice, Dementia Aha! Moment with Music

Caregivers who embrace patient care with win-win expectations know that aha moments can come at any time. Meaningful conversations and feelings drift into a now/here place that helps us worm our way from the unknown to the known. Aha moments are not forced or always joyous and explosive occasions. Many times they are subtle, quiet with a settled satisfaction that brings whispered gifts of personal knowing about life lessons. One reason some people assume hospice work is depressing is that our aha moments with patients are not shared enough with people who are unaware of powerful scenarios we experience sometimes.

Recall a few of the aha moments you have known, especially those that made you better people. Many of you have had them. Share these enlightenments with others who wonder why you do this work or those who express a general interest in what your work entails. Aha moments can enhance lives of patients and caregivers.

This poem describes one of my favorite aha moments as a hospice volunteer. I had a very challenging patient whose name was Katherine. She usually lay in bed sleeping or looking up at the ceiling. I couldn’t tell if she was bored, unhappy, mellow, or all three. Rarely speaking, she never sat up on her own or walked. We mostly stared at each other while I talked.

Knowing that Katherine had been active in her Baptist church in the South at one time, I decided to use my CD player with headphones (this was before iPods, etc.) to help her enjoy music sung by Mahalia Jackson, whom many hail as the greatest gospel singer ever. After reading this poem, you’ll understand why it’s one of my favorite aha moments and why I still smile every time I read it. Share your aha moments with others, and you’ll be smiling, too.

Sounds of Ecstasy

Headphones frame your head.

You look at me, your volunteer,

wonder what they can be.

Mahalia Jackson’s song erupts,

“When the saints go marching in...”

Sleepy eyes widen like popped corn.

“It’s a CD player,” I say.

Your mental video rewinds

through time from the nursing home

to an Alabama church service

where bodies rock to music.

I join you clapping with the choir.

Your stiffened hands move

with a powerful energy that rises

like a resurrected hot flash.

“It’s wonderful,” you whisper.

Mahalia responds singing,

“Walk all over God’s heaven...”

I picture you joking with Death

when it’s your time to holy dance

to the Other Side of Through.

Mesmerized by the music,

you soak in every song.

A CD player exhilarates you

with sounds of ecstasy.

Such an easy thing for me

to bring, but before I leave,

you say you love me twice.

© Frances Shani Parker from Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes

Frances Shani Parker, Author

Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers in America and other countries and also in e-book form at Amazon and Barnes and Noble booksellers.

Hospice and Nursing Homes Blog

Nursing Home Poem on Lonely Residents (Video 1:54 mins.)

This post includes the poem “Missing” from my book, Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes. 

As a hospice volunteer, I have seen too many lonely residents. More than once, I have been the only non-staff person regularly visiting a resident. Several of these residents had relatives and friends living in or near the city. One day, a woman at my resident's funeral thanked me for visiting her dying aunt. She said her aunt had been wonderful to her when she was growing up. She added that she didn’t visit her aunt during her years in the nursing home because she lived “on the other side of town.”

I’ve also heard relatives and friends excuse themselves from visiting by saying, “Mama doesn’t recognize me anymore, so she doesn’t know I rarely visit” and “I can’t bear to see my brother in this condition. I don't visit him because I want to remember him the way he was.” Unfortunately, for many residents, loneliness has become a way of life.

A study by Robert S. Wilson at Rush University Medical Center in Chicago concludes that lonely people may be twice as likely to develop dementia linked to Alzheimer's disease late in life than those who are not lonely. Research by University of Chicago psychologists Louise Hawkley and John Cacioppo concludes that lonely people go through life in a heightened state of arousal that becomes more apparent with aging. They also have a poorer quality of sleep, resulting in more daytime dysfunction.

The following poem speaks to the loneliness of residents everywhere, especially in nursing homes:

Missing

She waited,
hoping her years of caring
endured in grown-up minds,
rested in distant hearts,
conveyed how much she missed them.

She waited,
living real-time movies
of restless nights, anxious days
with inhaled hopes of fellowship,
exhaled sighs of deep despair.

She waited,
wishing nostalgic winds
flowed through cotton curtains,
brought relatives and friends
she cherished through the years.

She waited,
grasping like a New Year’s resolution,
like a second suspended in time
until her clock stopped ticking
for visitors who never came.

© Frances Shani Parker

This brief video demonstrates caregiving that helps prevent loneliness.

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes 
Hospice and Nursing Homes Blog