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Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

Sunday, December 4, 2022

Alzheimer's Dementia Reflections (Video 4:44)

                                                                                                                                           

As 2023 approaches, let's reflect on Alzheimer's dementia in terms of where we are and where we may be going in the future. We can begin by defining what dementia is in general terms. Dementia refers to a group of conditions that gradually destroy brain cells and lead to mental decline. According to the "Journal of the American Geriatrics Society," by the year 2025, an estimated 7.2 million Americans are expected to have Alzheimer's disease, the most common form of dementia that accounts for 60% to 80% of dementia cases. By 2060, unless there are major medical breakthroughs, current numbers will almost double.

Clearly, Alzheimer's is a challenge many people must face with preparedness by becoming as informed as possible in putting forth their best efforts in ways that benefit themselves as well as meeting needs of those living with the disease. People living with Alzheimer's may experience changes in behavior and personality such as anxiety and delusions.  Like a fluttering bee, Alzheimer's can leave caregivers wondering when the person in their care will perform in ways that will make honey or ways that will make them sting. How caregivers approach and handle their roles during their interactions is very important. Local Alzheimer's Association chapters can offer needed local assistance to caregivers. The 24/7 Helpline Phone Number  is 800-272-3900

The following ageless video below titled “It’s a Sparrow” is a moving example of how a negative caregiving experience can evolve into a positive one through thoughtful reflection. 


              


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. Visit Frances Shani Parker's Website.

Monday, April 4, 2022

Nursing Home Mealtimes With Dementia

"Food? What food?"

At nursing home mealtimes, I served as a hospice volunteer at several Detroit, Michigan nursing homes for many years. Hospice residents are predicted to have up to six months to live, but may exceed that time. I had contact often with residents who were assigned or not assigned to me. My assigned hospice residents were always my primary concern. Most of them shared rooms with up to three people. 

In the mealtime stories below, I shared a table with six other residents. Several were living with some form of dementia. Due to limited staff, I knew I would have to supervise, encourage, and generally keep an eye on everybody at the table. A Detroit, Michigan public school principal, I was used to multi-task management and didn’t mind assisting them weekly after school at all. These stories from my book Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes describe typical mealtime experiences with residents living with dementia:

I continued talking to Naomi, my assigned hospice patient, and assisting her while monitoring others at the table. I noticed that Petra had not touched any of her food. Petra was not a very independent eater, but I knew she was physically capable of feeding herself by any means necessary.

“Petra, your food is just sitting there getting cold. You have a whole tray of delicious things to eat. You should eat some and see how good it is. You’re a good eater. Eat your food.”
“Food? What food? I don’t have none.”
“The food on this tray is all for you, Petra. This is your food tray right in front of you. Watch me point to each item. You have coffee, juice, milk, mashed potatoes, fish, broccoli, bread, and fruit. That’s your name spelled P-e-t-r-a.”
“That’s not my name. My name is Petra. That’s somebody else’s name. That’s not my name. I know my name.”
“Well, that is still your food on the tray. You should eat before it gets cold. Go ahead and eat. Give it a try.”
“Eat? Eat what?”
“Your food, Petra, your fish, potatoes, and everything else.”
“Fish? What fish? I don’t have none. Do you see a fish here? I don’t see a fish. I don’t have none.” 

From previous experience, I knew that Petra and I could go on roaming forever around this same circle. Fortunately, she was sitting next to me. I gave her a taste of the fish first because I knew she liked it. Then I placed her fork in her hand and started her off eating. I did this in steps by steering her hand and giving her directions on putting food into her mouth, chewing, and swallowing. Residents with dementia often needed tasks broken into simple steps. Usually, she ate for a while by herself, even with her hands, once I started her off. But without any help getting started, she would sit and look at the food she said was not there. My other hand continued to assist Naomi, the resident assigned to me. My eyes monitored everybody at the table.

“Don’t do that! Leave my food alone! Get your nasty hands off my plate! Help! Can somebody help me?” screamed a resident at our table as if she were under attack. All the nurse aides were occupied feeding residents at other tables and experiencing their own mealtime problems. As the  unofficial table captain, I told Roscoe sternly to leave Charlena’s food alone. He gave me a confused look, pretended he didn’t know what I was talking about, but betrayed himself with a silly grin he thought I didn’t see. I leaned across the table and directed his attention to his own plate by putting his spoon in his food. He picked up his spoon and started eating again. Then I reassured Charlena that everything was okay, and she could finish eating. Charlena smiled with an air of triumph. Roscoe was in trouble, and she enjoyed knowing she helped to get him there.

Rita had been watching me help Naomi and Petra eat. Imitating me, she was attempting to feed George, but with her own used utensils. George had his mouth open obligingly to help. I interceded before any damage was done. By this time, several residents had spilled food on the table or the floor and had food stains on their bibs. Petra had to be restarted twice to eat the food she insisted she had never received. I had stood to lean across the table twice to settle other table disputes involving food and different residents.

Naomi ate quietly during all the interruptions. I had been giving her ongoing praise on how well she was doing. I also praised others at the table when they did well. They savored the attention, and Naomi wasn’t the least bit jealous. She had already told them that I was her guest and even offered me food which I declined. I had not gone there to eat and could not think about eating if I had. 

When one resident was praised, another would often say, “Look at me! I’m eating, too!” This reminded me of students at my PK-eighth grade school. They said the same thing when someone else was praised. I laughed, thinking the world was a universal classroom. Maybe the stars in the sky were created to be placed on foreheads of people around the world when they did something praiseworthy.

© Frances Shani Parker, Author, Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. Visit Frances Shani Parker's Website.

Tuesday, September 17, 2019

Social Robots: Caregiver-Older Adult Senior Evaluations (Research, Video 2: 54)


Before I begin sharing the wonders of social robots used to support caregiving, allow me to address any concerns you may have about robots replacing people or not being that important. Robots can’t replace people, but they can provide services that allow people more time to be caregivers. They give care recipients more opportunities to be supported and stimulated in daily living activities. They allow technology to accurately assess and evaluate their progress. Robots help older adults with dementia gain a degree of independence that encourages them to complete activities. 

But probably the best evaluators of how successful social robots can be are older adults and caregivers themselves. That’s when research such as this can be valuable. This research review on social robots aims to summarize the effectiveness of social robots on outcomes (psychological, physiological, quality of life, or medications) of older adults from randomized controlled trials. Eight databases were electronically searched including a total of 13 articles from 2,204 articles with these results:

1.    Social robots appeared to have positive impacts on agitation, anxiety, and quality of life for older adults.
2.    Results from a narrative review indicated that social robot interactions could improve engagement, interaction, and stress indicators, as well as reduce loneliness and the use of medications for older adults.
3.    Social robots appeared to have the potential to improve the well-being of older adults, but conclusions are limited due to the lack of more high-quality studies.

What kind of role will robots have in the future of older adults?  In this video, Rudy the robot is designed to be more affordable, to help around the house, be an interactive companion, and generally help older adults stay in their homes so they can be more independent. Here’s Rudy!


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers.
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