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Showing posts with label Caregiver Support. Show all posts
Showing posts with label Caregiver Support. Show all posts

Sunday, December 4, 2022

Alzheimer's Dementia Reflections (Video 4:44)

                                                                                                                                           

As 2023 approaches, let's reflect on Alzheimer's dementia in terms of where we are and where we may be going in the future. We can begin by defining what dementia is in general terms. Dementia refers to a group of conditions that gradually destroy brain cells and lead to mental decline. According to the "Journal of the American Geriatrics Society," by the year 2025, an estimated 7.2 million Americans are expected to have Alzheimer's disease, the most common form of dementia that accounts for 60% to 80% of dementia cases. By 2060, unless there are major medical breakthroughs, current numbers will almost double.

Clearly, Alzheimer's is a challenge many people must face with preparedness by becoming as informed as possible in putting forth their best efforts in ways that benefit themselves as well as meeting needs of those living with the disease. People living with Alzheimer's may experience changes in behavior and personality such as anxiety and delusions.  Like a fluttering bee, Alzheimer's can leave caregivers wondering when the person in their care will perform in ways that will make honey or ways that will make them sting. How caregivers approach and handle their roles during their interactions is very important. Local Alzheimer's Association chapters can offer needed local assistance to caregivers. The 24/7 Helpline Phone Number  is 800-272-3900

The following ageless video below titled “It’s a Sparrow” is a moving example of how a negative caregiving experience can evolve into a positive one through thoughtful reflection. 


              


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers. Visit Frances Shani Parker's Website.

Sunday, June 13, 2021

Male Caregiver Interview: Frances Shani Parker and Frank Gasiorek

                               

                                     Catherine and Frank Gasiorek

I met Frank Gasiorek during a time when he was devoted to taking care of his ill mother who died. Like millions of people carrying personal stories others will never know, he told me he was a caregiver after I happened to mention my involvement with eldercare. According to AARP, the typical caregiver is a middle-aged woman caring for a relative, often her mother. Nowadays, 40 percent of the 40 million Americans caring for loved ones are men. They may accept a caregiving role while having little experience and may be less inclined to reveal their problems to others. 

From my conversations with Frank, I began to view him as an excellent role model for caregivers in general, especially men. In this interview with me, he shared his caregiving journey:

1)   Frank, how did you become your mother’s primary caregiver?

I began my role as my mother's primary caregiver due to being an only son with siblings living out of state. Also, having a strong bond with a person who was a dedicated single parent and mentor during my early childhood years gave me the desire to give back and return the service.

2) What concerns do you think are unique to caregiving of a parent by an adult child, especially one of the opposite sex?

Sometimes different interests and backgrounds may be factors.  However, the realization that I only get one of these, a unique person and mother, is important. As the years passed and more personal care and attention were needed, my mother stated she did not want to live her final years outside of her home. She also did not want outsider care assistance.   

Acceptance of my role as a male caregiver had to be addressed. No longer am I the son. I had to explain to my mother that, when I step in as the caregiver, she needs to respect the care she receives. I am the professional person providing home care. There have been times when she returned from the hospital and then to rehab and back home. I did contract some part-time assistance with homecare nursing for the short term. 

3) Has your being a male made you less prepared or efficient as a caregiver?

Having worked previously within the healthcare system has exposed me to the assistance that comes with caregiving. In addition, having been rooted in human sensitivity has provided me with a foundation to complement the needs of the healthcare person.

4) What are some resources that you have found to be especially helpful and that you would recommend for others?

Always consider the local church, community and city services that offer guidance and support. Public and private agencies are easy to research via the Internet.

5) Do you communicate regularly with other caregivers for support?

Having a network of colleagues associated with caregiving is essential to maintaining balance. A support group with other caregivers creates a bond of positive feedback. Primary physician support staff members are often good individuals for consultations. 

6) Caregiving can be stressful and socially isolating. Have you experienced this? If so, how do you cope with these challenges?

My network of support helps to keep me balanced when I experience challenges. We allow one another to vent our daily drama of caring for loved ones.

7) What rewards have you enjoyed as a caregiver?

Spiritually satisfying, caregiving brings the joy of assisting another person for the common good.  Keeping a person exposed to dignity and love is uplifting to the spirit.

8) What advice would you give to other caregivers now that you understand what this responsibility entails?

Caregiving is not for everyone. Caregiving is not easy.  Caregiving takes planning and involves orchestrating many daily human needs of an individual. Always maintain space between caregiving assignments and appointments to recharge.

9) How can those who are not caregivers support those who are?

Financial support would seem to be the easy answer. Nonetheless, periodic backup team members who are not caregivers can greatly assist primary caregivers. For example, team members can provide helpful phone calls to caregivers and homebound individuals.
 
   10) Do you have any final words?

Caregiving is a rewarding experience. As our mature population continues to live longer and more independently, there is an increasing need for caregiving at different levels. Respect for life must be admired, honored and planned for to create quality life.

Frank, thank you for sharing your caregiver experience. Your firsthand knowledge will be beneficial to caregivers, patients and many others involved in improving quality of life for those in need of caregiving assistance.


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers in America and other countries and in paperback and e-book forms at Amazon booksellers. Visit my website at www.francesshaniparker.com.

Wednesday, December 14, 2011

Male Caregiver of Mother: Interview with Frank Gasiorek and Frances Shani Parker



Catherine and Frank Gasiorek

Frank Gasiorek is a man devoted to his terminally ill mother. He belongs to a growing group of 14.5 million men who make up one out of three caregivers in America. Like millions of people carrying personal stories most of us will never know, he told me he was a caregiver only after I happened to mention my involvement with eldercare. From our conversations, I have come to view him as an excellent role model for caregivers in general, especially men. In this interview with me, he shares his caregiving journey:

1)   Frank, how did you become your mother’s primary caregiver?

I began my role as my mother's primary caregiver due to being an only son with siblings living out of state. Also, having a strong bond with a person who was a dedicated single parent and mentor during my early childhood years gave me the desire to give back and return the service.

2)   What concerns do you think are unique to caregiving of a parent by an adult child, especially one of the opposite sex?

Sometimes different interests and backgrounds may be a factor.  However, the realization that I only get one of these, a unique person and mother, is important. As the years passed and more personal care and attention were needed, my mother stated she did not want to live her final years outside of her home. She also did not want outsider care assistance.   

Acceptance of my role as a male caregiver had to be addressed. No longer am I the son. I had to explain to my mother that, when I step in as the caregiver, she needs to respect the care she receives. I am the professional person providing home care. There have been times when she returned from the hospital and then to rehab and back home. I did contract some part-time assistance with homecare nursing for the short term. 

3)   Has your being a male made you less prepared or efficient as a caregiver?

Having worked previously within the healthcare system has exposed me to the assistance that comes with caregiving. In addition, having been rooted in human sensitivity has provided me with a foundation to complement the needs of the healthcare person.

4)   What are some resources that you have found to be especially helpful and that you would recommend for others?

Always consider the local church, community and city services that offer guidance and support. Public and private agencies are easy to research via the Internet.

5)   Do you communicate regularly with other caregivers for support?

Having a network of colleagues associated with caregiving is essential to maintaining balance. A support group with other caregivers creates a bond of positive feedback. Primary physician support staff members are often good individuals for consultations. 

6)   Caregiving can be stressful and socially isolating. Have you experienced this? If so, how do you cope with these challenges?

My network of support helps to keep me balanced when I experience challenges. We allow one another to vent our daily drama of caring for loved ones.

7)   What rewards have you enjoyed as a caregiver?

Spiritually satisfying, caregiving brings the joy of assisting another person for the common good.  Keeping a person exposed to dignity and love is uplifting to the spirit.

8)   What advice would you give to other caregivers now that you understand what this responsibility entails?

Beware. Caregiving is not for everyone. Caregiving is not easy.  Caregiving takes planning and involves orchestrating many daily human needs of an individual. Always maintain space between caregiving assignments and appointments to recharge.

9)   How can those who are not caregivers support those who are?

Financial support would seem to be the easy answer. Nonetheless, periodic backup team members who are not caregivers can greatly assist primary caregivers. For example, team members can provide helpful phone calls to caregivers and homebound individuals.
 
   10)  Do you have any final words?

Caregiving is a rewarding experience that is not for everyone. As our mature population continues to live longer and more independently, there is an increasing need for caregiving at different levels. Respect for life must be admired, honored and planned for to create quality life.

Frank, thank you for sharing your caregiving journey. Your firsthand knowledge will be beneficial to caregivers, patients and many others involved in improving quality of life for those in need of caregiving assistance.

Postscript:


Synopsis of Catherine Louise Palmer-Gasiorek  

April 22, 1930 - June 16, 2012

Born to Lenard and Emily (Eby) Palmer on April 22, 1930 in Monroe, Michigan on 10th Street, Catherine was the fifth of nine children, five sisters and three brothers. She was baptized in Monroe at Saint Michael's Church on Front Street where she attended grade school through second grade.  However, the economic downturn of the 1930's developed change for the family, and they eventually moved to a farm in Carleton on O’Hara Road near Saint Patrick's Church. There she continued school and the sacraments of communion and confirmation. When she was thirteen years old, she met Detroiter Rose Radajewski who was part of a family produce business expanding market share to supply Eastern Market with products.   

It was at that time she met Frank A. Gasiorek, then eighteen and another Detroiter, who was employed to assist with the produce service. Both Catherine and Frank developed a close friendship over several years. However, the war years took him away to the Pacific Campaign at Saipan, Nagasaki and other area islands. He returned at the age of twenty-two when Catherine was seventeen, and they were engaged in Detroit at Rouge Park just off Warren Avenue and Outer Drive where Frank once caddied for golfers. Shortly after, they were married on November 8, 1947 with Frank embracing her community and home and Catherine complementing him by embracing his culture and home. By 1949 the family was started to eventually consist of five children, four daughters and a son. The happy family unfortunately experienced change as sadly Frank expired in his home May 25, 1969 during his early 40's.  

Catherine maintained the family and home by keeping focus on basic needs and spiritual concerns for everyone. The years passed, and the children grew up and married to accomplish hopes and dreams, bringing both grandchildren and great-grandchildren to fill her years with joy. During the last twenty years, Catherine experienced poor health. The last five years offered more challenges with countless miracles to recover and return to a quality life. She wanted to be respected and honored with her final days in her home and in the company of family and friends. Quietly, she passed away in exactly the fashion she hoped for on Saturday, June 16, 2012, the feast day of the Immaculate Heart of the Blessed Virgin Mary and the day after the Most Sacred Heart of Jesus. Catherine was surrounded by family, martyrs, saints, angels and heavenly hosts ushering her towards the highest alter in heaven to celebrate the Eucharistic feast for the Lamb of God and the Resurrection of her soul with Christ, her Lord and Savior.

Joys: Family, friends, music, cultural events; Faith in Mary, the Holy Family, the Eucharist, IHM Sisters

Quotes: “We all have a number of days given to us at birth. You are numbered.”  
“Your health is your wealth” and “Some other guy has it worse off than you have it.” 

Flower Choice: White mums and roses

Favorite Color: Baby blue

Cherished Object: Communion Plaque of Mary

Favorite Prayer: "Hail Mary" and “Jesus my Lily, Jesus my Flower, the Lord be with me, my dying hour.”

Last Words: “I am ready.” 




Frances Shani Parker, Author

Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers in America and other countries and in e-book form at Amazon and Barnes and Noble booksellers.

Friday, September 28, 2007

Caregiver Stress Solutions (Video 1:40 mins.)

Caregiving and stress hug too much. While many caregivers welcome the opportunity to give of themselves to their loved ones, they still find the challenge overwhelming sometimes. Then there are caregivers who never wanted the job. Perhaps they were the only ones available who would step up and accept responsibility for a difficult problem. They need help the most. Stress can take a serious physical, mental, and emotional toll on caregivers. For that reason, caregivers must always be mindful of taking care of themselves.

Probably what caregivers need most is for others to be their caregivers in some ways. The Alliance for Aging and Research reports that surveyed caregivers expressed these concerns:

1) They want programs that save them time, give them a rest from caregiving, and make them feel that they are cared about.

2) Six in ten caregivers say they would be somewhat likely to use the services of an expert they could talk to about their stress. About the same percentage would use a mobile health service in their neighborhoods.

The average person can help a caregiver in several ways:

1) Offer to assist a caregiver by temporarily relieving some of their burden physically or financially.

2) Share an uplifting activity with them.

3) Keep them informed about services that can help them. Aid them in getting the services.

4) Be a good listener and offer encouragement.

This video shows the stress of caregivers and their need for support.

Frances Shani Parker, Author
"Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes”
Hospice and Nursing Homes Blog