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Saturday, July 31, 2010

Healthcare Urban Legends Test-- Nursing Homes, Health, Senior Citizens


If you have opened forwarded e-mails or “chain letters,” you’ve probably read false information that you thought was true. Believing what you read may have caused you to panic. Wanting to help others, you couldn’t wait to forward the warning, protection prayer, or request for a donation to family and friends. But there’s a more constructive way to deal with this phenomenon. Today’s post offers a brief mental workout to help keep you informed about nursing homes, health issues, and seniors while squashing rumors.

Can you guess which of the following health-related stories are true or false? The correct answers are at the end.

1) While being transported from a nursing home to a doctor’s office for an appointment, an elderly patient died when the gurney to which he was strapped rolled away with him, overturned, and caused a head injury.

2) The artificial sweetener aspartame has been proved responsible for an epidemic of cancer, brain tumors, and multiple sclerosis. This story gives a detailed description of the health dangers of diet drinks.

3) Some senior citizens are choosing to live their retirement years on cruise ships where the amenities are much better and the average costs per day are cheaper than living in nursing homes.

Fortunately, there is a website that can help you decipher what’s true and what isn’t. Many of you are probably aware of snopes.com, which has been around for years. This website is the Internet reference source for urban legends, folklore, myths, rumors, and misinformation. If you haven’t already, you might want to bookmark this site and check out information you receive. You can delete the hoaxes and end the spreading of false information. 

Answers:     1. True    2. False     3. True

Frances Shani Parker, Author

Saturday, July 24, 2010

Can Older Adults With Dementia Enjoy Life? (Research, Arts Video 3:04 mins.)

I have a friend whose mother has Alzheimer's disease. He and his father are her primary caregivers at home. He says that people generally feel sorry for them. When his mother’s name comes up in conversations, the tone changes to one of sadness. They also assume that his mother must be an unhappy person because of her mentally impaired condition. The other day, I smiled at his response when I asked him how she was doing. He said, “Mama is doing just fine. Pops and I focus on keeping her healthy and active. Most of the time, she is as happy as she can be.”

A research study in the “International Journal of Geriatric Psychiatry” supports that assessment. Consisting of interviews with 1,620 community-dwelling older adults, the study examined the following:
1) Overall life satisfaction with material circumstances and with social circumstances of older adults with no cognitive impairment, with cognitive impairment without dementia, and with dementia
2) The effect of cognition on life satisfaction across a broad spectrum of cognition
3) The effect of factors such as depressive symptoms, functional impairment, education, and social support.
While participants with dementia and participants with cognitive impairment without dementia did have lower life satisfaction than those with normal cognition, the effects were relatively small. The study concluded that, although cognition is associated with life satisfaction, older adults are generally satisfied with life.

Older adults with dementia have varied days like everyone else. Happy memories and enriching activities can slow dance into their realities and fill them with joy. This video titled “I Remember Better When I Paint: Treating Alzheimer’s Through Creative Arts” shows how creative arts activities can enhance the quality of their lives. A longer DVD version can be purchased at amazon.com, frenchcx.com, artistsforalzheimers.com, and hilgos.com.


Frances Shani Parker, Author

Saturday, July 17, 2010

Hospice Volunteers Share Experiences (Hospice Poem, Video 3:25)


Each hospice volunteer has a unique story to tell.  This is my story poem about my hospice volunteer experiences in Detroit nursing homes:


Reflections of a Hospice Volunteer
By Frances Shani Parker 

I leave my car and walk into a world with many fates.
The people live reality where three words dominate:
“Nostalgia” brings memories that make them question why.
“Delusions” create fantasies that often come alive.
“Anticipation” beckons the beginning of each day.
A visit, party, special newswhat is on the way?

Sedonia tells me stories of how life used to be.
Many things seem different now. She’s almost ninety-three.
Moochie shields unseen friends he pledges to protect.
I wonder if he sees and hears the friends he manifests.

Dexter smiles and says with pride while waiting for his son,
“All my children visit me, and each is Number One.”
Pearl yells, “I want some cake, and bring it just for me!”
She thinks that I’m employed here. She sees me every week.

An empty bed reminds me that someone else has gone.
Next week I’ll see someone new. Life’s cycle will go on.
Juan trails me through each room while planning his escape.
“I have somewhere to go,” he pleads. I stop him at the gate.

I leave this special world today with wisdom strong and rare,
Respecting every circumstance that brought each person there.
Our futures are unknown to us like roads with endless curves.
I drive away feeling good, happy that I served.

© Frances Shani Parker
Excerpt from Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes

Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many booksellers and in e-book form at Amazon and Barnes and Noble booksellers.

Saturday, July 10, 2010

Intergenerational Partnerships Change Negative Stereotypes About Older Adults (Research)


Frances Shani Parker accepts flowers from Yvonne Butler-Woods at the Revelation Lutheran Church Senior Celebration. Keynote speaker, Ms. Parker spoke about intergenerational partnerships and the impact of negative stereotypes about older adults on children.
 
(Note: This is not her speech.)                                 
A former school principal, I encourage intergenerational experiences between students and older adults. I feel so strongly about them that I include a chapter on school-nursing home partnerships in my book "Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes”

At my school, we had students complete pre and post surveys as part of their nursing home visits. We asked them what their expectations were about nursing homes and the residents who lived there. Fourth graders told us they thought residents would be boring, slow, and nosy, trying to get into their "business." These were only a few of the negative stereotypes they had already developed about older adults. Students also participated in several classes on aging and eldercare before their visits. They learned how to perform, analyze, record, and disseminate scientific research. The lessons we created were integrated into the regular school curriculum supporting academic standards. This teaching approach is called service-learning.

Of course, students were amazed at how their opinions changed when they took the same surveys after returning to school from their visits. In addition, they witnessed dementia firsthand and developed a healthier understanding of aging, illness, caregiving, and acceptance of others' differences.

A research summary reported in “Medical News Today,” Source: Jamie Hanlon, confirms that negative stereotypes about the elderly can be present in children as young as three. The study reported that children with fewer contacts with seniors had more negative stereotypes about them. While children also learn negative stereotypes from the media and from observing how others treat seniors, they can learn many positive lessons about older adults through their early personal interactions with them.

The negative biases children embrace can impact them through the years in ways that are damaging in how they treat older adults, perceive themselves, and in how they perceive aging. Perhaps you have noticed some young people exhibit a strong lack of tolerance or empathy for seniors. I certainly have. Unfortunately, these youngsters may grow up to become the negative stereotypes they believe. Positive intergenerational experiences involving young people and older adults are wonderful win-win opportunities. 

Frances Shani Parker, Author

Saturday, July 3, 2010

Palliative Care or Supportive Care? Which Would You Prefer? (Research, Video 3:04)

Would a rose by any other name smell as sweet?

I have met quite a few people who don’t have a clue as to what palliative care is. Some are even in the healthcare profession. To add to the confusion, many who do know what it is refer to palliative care using various pronunciations (sound pronunciation). Then there are those healthcare organizations such as the American cancer centers that have adopted use of the name palliative care but continue to get referrals late for those needing it. Is this due to an association of the name palliative care with hospice care?  Would all these problems regarding the name palliative care be resolved by just replacing the name with a more user friendly one such as supportive care?

Obviously, the name palliative care carries several barriers that need to be explored. That’s why this research caught my interest. This study by the Anderson Cancer Center in Houston, Texas reports how the name palliative care versus the name supportive care may impact cancer patient referrals.

Can a name be a barrier to patient referrals for care? Medical oncologists and their midlevel providers (advance practice nurses and physician assistants) at a comprehensive cancer center think so. 140 out of 200 of them participated in a survey to determine the impact of the name palliative care compared with the name supportive care on patient referrals and to determine whether there was an association between demographic factors and the perceptions of the two names. What were the results?

1)    The name palliative care compared with the name supportive care was perceived more frequently by medical oncologists and midlevel providers as a barrier to referrals, decreasing hope, and causing distress in patients and families.

2)    Participants significantly preferred the name supportive care compared with palliative care. They also stated more likelihood to refer patients on active primary and advanced cancer treatments to a service named supportive care.

While these results are not surprising, where does this leave the name palliative care? Is this a matter of educating the public more to the meaning and appreciation of what palliative care can provide? Or is this a matter of phasing out usage of the term palliative care with patients and replacing it with the name supportive care? What do you think?

This video explains palliative care: “Palliative Care: What is it and who is it for?”


Frances Shani Parker, Author

Monday, June 28, 2010

Person-Centered Bathing: Long-Term Care Culture Change (Research)


Do you remember how special bath time was when you were a child? Did you have toys floating on the waves of your rolling sea? Were there bubbles sometimes adding magic to the experience of getting fresh and clean? Maybe you still have certain rituals like music, fragrance, and candlelight that take bathing to another level when you want to pamper yourself. These simple treasures can add so much to uplifting spirits. While bathing may seem like a universal activity, individual preferences add personal joy. Shouldn’t nursing homes be sensitive to residents’ personal preferences when they can be implemented?

A research study by the Yale School of Medicine examined the bathing experiences, attitudes, and preferences of older persons through in-depth interviews. Three themes emerged:
1) The importance and personal significance of bathing to older persons
2) Variability in attitudes, preferences, and sources of bathing assistance
3) Older persons' anticipation of and responses to bathing disability
Clearly, their attitudes and preferences are important when person-centered interventions for bathroom design are considered.
My book "Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes” has a chapter titled “Baby Boomer Haven,” which takes readers on a tour of an imaginary nursing home that incorporates best practices currently being used in nursing homes today, but not nearly enough. Of course, innovative bathing systems meeting residents’ needs continue to be invented. The tour is led by a resident in a wheelchair. This excerpt from the tour addresses bathrooms:
“This might be a little unusual, but I just have to show you one of our bathrooms. Using the bathrooms is a pleasant experience here. We have choices about whether we want a shower, a bath, or a sponge bath, and when we choose to take them. The Jacuzzi tubs and music are great motivators to come here. Deodorizers keep our bathrooms smelling fresh at all times. Notice the bright artwork that colors the walls and even the ceilings, so we can admire beauty when we are in reclining positions. We can soak in beauty everywhere we look. These simple touches tell us that somebody thought we were worth the effort.”

Isn’t that what quality of life is all about?

Frances Shani Parker, Author

Monday, June 21, 2010

Medical Student Training: Hospice Patients and Staff (Research)


I was sitting on a hospital examining table while contemplating when I could get dressed and escape. That’s when a doctor walked in with ten medical students in tow, all eager to hear about this new exhibit—me.  A former school principal, I totally support minds being terrible things to waste and nobody being left behind. But having a group of strangers walk in unannounced under these circumstances was uncomfortable. And I wasn’t even a hospice patient.

How do hospice patients feel about being participants in the training of medical students? Is it annoying being scrutinized by groups of students while patients struggle with their own health issues? What about the healthcare staff? Do they welcome opportunities to participate in educating others through patient contact, or do they view these experiences as inconvenient for them and intrusive to the terminally ill?

Hospice patients and staff were interviewed regarding their views on involvement in the training of medical students. The research results indicate that hospice patients are “strongly positive” about meeting medical students. Staff members carefully select patients based on specific issues. When done appropriately, training medical students with hospice patients and staff can be a win-win experience for everyone. 

Frances Shani Parker, Author

Thursday, June 17, 2010

Television Viewing in Long-Term Care (Research)

                         
"I Love Lucy” Television Show

My grandmother loved watching the soaps on television. Home alone during the day, she laughed, cried, and wrung her hands with worry over strangers who took over her living room daily. But they weren't strangers to her. Like Lucy, she had plenty of explaining to do when I came home.

As a hospice volunteer, I wasn’t surprised at all when I visited nursing homes and saw the important role television played in many senior residents’ lives. Beverly, one of my patients, couldn’t hear very well. She disliked wearing her hearing aid as much as she disliked wearing her false teeth. But that didn’t stop her from eating her peanut butter sandwich crackers while watching television in her room. She listened carefully and tried to make sense of whatever she could. Later, she would ask me to unravel her confusion about a world that was nothing like she remembered. Even the weather was different. And why didn’t Oprah and Stedman just get married?

Some people have negative opinions about residents watching television in long-term care facilities. They think it makes them passive and less healthy. And they would be correct sometimes. I have certainly seen television used as a poor substitute for planned quality time. But watching television can be a positive experience under appropriate circumstances when it’s not used in excess. Research even supports this.

In a study of two nursing home settings, rural and urban, with residents aged 82 through 100, resident interviews and observations reported these results:
Television viewing contributes to structuring daily life, to satisfying old peoples' needs for reflection and contemplation, and to residents’ remaining socially integrated. (That certainly worked for my grandmother.)

Nursing home residents are often curious and eager to know about what is going on outside the nursing home world, even when they don’t agree with what they discover. In fact, disagreement can add to lively social discussions. Watching television and learning new information helps residents stay engaged with others and contributes to their wells of communication. Hmm, sounds like the same positive impact good television can have on people in general.

Frances Shani Parker, Author

Saturday, June 12, 2010

Curative Medical Care vs. Non-Curative Hospice Care: Two Men in Love with the Same Woman


Curative medical care and non-curative hospice care are like two men in love with the same woman. The curative man, who has enjoyed many wonderful years with her, is reluctant to let her go. But their joy together has declined with time. While she appreciates the fulfillment they shared in the past, she now feels a lack of commitment to him and an urgency to move on with her life. The hospice man, the new love in her life, fills the void she is experiencing and brings an essential enhancement to her well being. He longs to stay with her because their relationship has reached a mutually meaningful level. The woman he loves embraces the happiness his hospice presence brings.

Unfortunately, many experience this love triangle in varied ways. Patients may resist the prediction of death within months and the prospect of involving outsiders as caregivers. Some doctors and caregivers may be reluctant to admit that a patient cannot be saved. Medical staff focused on curing all patients may not totally commit to the hospice philosophy of non-curative care when working with hospice patients.

Love triangles like this that exist in nursing homes and other institutions must be resolved with focus on the best interests of patients. In order to improve treatment of the terminally ill, institutions that have hospice programs must be dedicated to promoting staff expertise in hospice practices. This commitment must include clear administrative support with ongoing education and monitoring of staff practices. This will ensure that hospice patients receive services appropriate to their non-curative condition. 

What’s love got to do with it? Everything. In some institutions where these positive partnerships have been implemented, hospice practices such as better pain management have naturally become part of the care given to terminally ill patients who are not in hospice programs. True love can be contagious like that.

Can two men be in love with the same woman? Sure, if they respect each other’s boundaries, strive for a healthy relationship including the woman’s needs, and understand that, when lovers lose their mutual joy and loyalty, moving on can be love’s greatest expression.

Frances Shani Parker, Author

Saturday, June 5, 2010

Stereotypes About the Elderly and Effects (Research and Video 2:27 mins.)


Like many of you, I belong to several social media networks. However, there is one I seldom use, due to the immaturity I have encountered there, particularly regarding the elderly. Below is a brief summary discussion on a life-threatening topic that I initiated there about seniors and the prevention of HIV/AIDS:

“According to the U.S. Centers for Disease Control, one-quarter of the one million HIV-positive people in the U.S. are older than age 50. Half are expected to be older than 50 by 2015. People tend not to think of HIV/AIDS as an illness of senior citizens, but it is. Seniors must be committed to not taking sexual risks.”

I received over a dozen responses, some too vulgar to print here, from various people, along with degrading, so-called funny photos of old people. None took this matter seriously. These are a few examples:

1) “You just made me throw-up in my mouth a little.”

2) “CUT IT OUT OR I WILL REPORT YOU!!!”

3) “What's considered a sexual risk for an old person? Not wearing a   diaper?”

4) “Sex also puts them at risk for hip fractures. That would seriously suck. A hip fracture and aids. Double whammy.”

5) “How about old people just stop having sex?”

So much for intelligent discussion. I am open to constructive, controversial debate, but that group “discussion” took blatant prejudice to another level. Truthfully, it is yet another example of negative stereotypes embedded in our society about the elderly. They are all over the media.

These and other stereotypes affect those who are victimized by them, and impact the elderly in detrimental ways. Research reported in Aging & Mental Health explains that negative aging stereotypes impact how the elderly see themselves and how they function. They become more dependent on others, have lower levels of risk taking, subjective health and extraversion, and higher feelings of loneliness. These are concerns we should keep in mind as we continue to advocate for eldercare improvements.

In this video titled “See the Person, Not the Age,” a young actress transforms herself into a senior and compares people’s reactions toward her. This experiment is part of the Scottish government campaign against ageism, an international problem.



Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback at many online and offline booksellers and in e-book form at Amazon and Barnes and Noble online stores.

Saturday, May 29, 2010

Predicting Death of the Terminally Ill: End-of-Life Care (Research and Video 2:55 mins.)


Consider that almost half of the people over 85 years old die annually in nursing homes across America. Even when they don’t share what they think, family members, friends, and the nursing home staff often develop their own individual perspectives about when terminally ill patients will actually die. Unfortunately, because it is not always easy to predict how close to death someone is, inaccurate guesses are made that may deny end-of–life care to those who might benefit from it. Although the predicted time of death for hospice patients is within six months, I have had hospice patients ranging from dying immediately after being assigned to hospice to those staying in hospice for years.

What do people consider when they set out to predict death? A research study that included 45 residents was set up to create a framework for organizing social interactions related to end-of-life care and to characterize the social construction of dying in two nursing homes. The resulting framework included five categories related to the possibility of death:

1) Dying allowed
2) Dying contested
3) Mixed message dying
4) Not dying
5) Not enough information

Based on predictions, over half the resident cases were classified as mixed message dying or not enough information. This indicates the ambiguity regarding residents’ care plan goals found in the two nursing homes in the study. These results imply the importance of residents, family, staff, and physicians working together to determine the dying status of residents as it relates to social interactions and healthcare the resident receives. Shared conversations about goals of care, and how these goals will be reached are important in determining the quality of care residents receive. You can read more about this research study from the "Gerontologist."

While on the subject of predicting death, many of you probably remember reading in the news two years ago about a cat named Oscar that predicted deaths of nursing home residents. Oscar has even received a hospice award. In this video titled Cat Is Harbinger Of Death (CBS News),” Oscar’s death predictions are discussed.


Many healthcare staff members who work with dying patients will tell you they have had patients share stories about seeing dead people, ghosts, spirits they recognize, and angels. View this post for my personal story and an informative video: https://www.linkedin.com/pulse/end-of-life-seeing-dead-people-angels-frances-shani-parker?trk=mp-author-card


Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers.

Saturday, May 22, 2010

YMCA SilverSneakers Senior Fitness Program: Research Shows Benefits (Video 2:20 mins.)

Several of my friends are big fans of the YMCA SilverSneakers fitness program for seniors. SilverSneakers, which originated in 1992, is the nation’s leading exercise program designed exclusively for older adults. Held three days a week at many YMCAs, classes provide excellent opportunities for seniors to reap all the rewards of staying fit while reinforcing relationships with other participants.

Research shows that SilverSneakers benefits participants in general, especially those who have diabetes and or depression. These studies were funded by Centers for Disease Control and Prevention (CDC) and conducted by Group Health and the University of Washington (UW). Over 5,000 participants were studied. Among results of the studies are these important conclusions:

1)    Lower total health care costs

Older Medicare beneficiaries with diabetes who participated in SilverSneakers had notable reductions in total annual health care costs after both one year in the program (-$1,633) and two years in the program (-$1,130) compared with non-participants. Even those who visited less frequently in year two still saw health benefits.

2)    Lower risk of depression in year two

At least two visits per week to SilverSneakers classes during the first year were significantly associated with a lower risk of depression in year two.

3)     -29% Lower hospitalization rate
The cost savings were largely attributable to fewer hospital admissions and lower inpatient care costs with those hospitalizations.
4)    Greater savings with more participation

SilverSneakers participants who made an average of two or more visits a week in year one had significantly lower adjusted total health care costs in year two (-$2,141) than those who made fewer than two visits per week.

5)    Increased preventive care

SilverSneakers members utilized more preventive services.

This video highlights rewarding experiences seniors have while participating in the SilverSneakers program.


Frances Shani Parker, Author

Tuesday, May 18, 2010

Physician-Assisted Suicide: Interview with Dr. Jack Kevorkian (Research and Video 4:59 mins.)


Feb. 6: 1991: Physician-assisted suicide advocate Dr. Jack Kevorkian poses with his “suicide machine” in Michigan. (Northwestern University Library)

Dr. Jack Kevorkian, also referred to as Dr. Death, is best known for his public support of patients’ right to physician-assisted suicide. He admits to having participated in at least 130 suicides. After being tried in court several times and shown on national television deliberately causing a man to die, Kevorkian was ultimately convicted of second-degree murder. In prison, he served eight years of a 10-25-year sentence. His parole includes not helping anyone else die.

Dr. Kevorkian has been a very controversial public figure for many years. A popular HBO movie titled “You Don’t Know Jack” is based on his life. His ideas about euthanasia have important implications in discussions about end-of life care and medical ethics.

In a   research study done in Oregon,  where the Oregon Death with Dignity Act allows terminally ill patients to obtain physician aid in dying, it was reported that these persons were motivated by worries of “future physical discomfort and losses of autonomy and function.” Healthcare workers can help patients who have these concerns and express an interest in physician-assisted suicide by bolstering their sense of control, educating them, and reassuring them about managing future symptoms.

The following video includes CNN interviewer John Roberts and Dr. Jack Kevorkian. Discussion includes prison life, physician-assisted suicide, and Michael Jackson’s death.


Hospice-palliative volunteers bring a unique perspective to the ongoing debate about physician-assisted suicide. You can read their views here:

Frances Shani Parker, Author

Sunday, May 9, 2010

Seniors and Casino Gambling: Who’s Really Winning?


Across the country, the numbers of seniors visiting casinos are growing faster than any other age group. Casinos are estimated to take as much as 65% of their revenue from those aged 65 and older. Detroit, Michigan has three major casinos that get plenty of business from seniors in Michigan and beyond. They love to take field trips to casinos as a social activity, but is it really just social?

Research from the Institute of Gerontology at Wayne State University in Detroit causes serious concerns about seniors and casino gambling. Including 1,410 randomly selected adults, aged 60 and older, the study concluded that one in five older adults who enter a casino eventually displays problem gambling behaviors. Peter Lichtenberg, Ph.D., director of the Institute of Gerontology and one of two authors of this study published in the “Journal of Aging Studies” said, “Urban elders are especially vulnerable to problems because higher percentages of them have low income, few social supports, and poor mental and physical health.” Symptoms of problem gambling include compulsive gambling and lying about  time and money spent.

Findings from this study should be taken very seriously, particularly when considering serious health and financial problems among older adults in the future. Expected consequences related to seniors’ increasing participation in casino gambling are “financial loss, the erosion of personal relationships, depression, suicide, substance abuse, and personality disorders.” No winners there.

Full Article Citation:  
Zaranek, R. & Lichtenberg, P. (2008).  Urban elders and casino gambling:  Are they at risk of a gambling problem?  "Journal of Aging Studies," 22, 13-23.



Frances Shani Parker, Author
Becoming Dead Right: A Hospice Volunteer in Urban Nursing Homes is available in paperback and e-book editions in America and other countries at online and offline booksellers.